Joshua Boze

The event focused on Rare Disease Day, highlighting the progress and mission of the Florida Institute for Pediatric Rare Diseases. Key topics included the institute's commitment to building an integrated model for genomic diagnostics, clinical care, research, and education to serve children and families. Discussions also centered on the importance of public policy, the establishment of new genomic screening programs, legislative advocacy, and the launch of a master's degree program in genetic counseling. Participants celebrated the collaboration between universities, hospitals, and corporate partners in advancing precision medicine and offering hope to families affected by rare diseases.

The meeting focused on the migration process from the current REDCap system to a new IT-managed REDCap platform. Key discussion topics included project migration deadlines, the necessity of re-enabling external modules and MOSIO configurations, the impact of migration on existing survey links and QR codes, and the required IRB approvals. Additionally, the presentation covered data management best practices, including naming conventions for forms and variables, the importance of testing changes in production, and procedures for backing up metadata and data.

The meeting included an update on the ASPIRE strategic plan, focusing on progress in the research enterprise, efforts to expand interdisciplinary collaboration, strengthen industry partnerships, and enhance faculty recruitment and retention. Performance metrics were shared, noting 1,274 proposals submitted totaling $1.04 billion in the third quarter of FY26 and awards totaling $226.3 million. Discussion also covered external challenges such as federal funding delays, policy uncertainty, and workforce constraints, alongside updates on activities in Washington, D.C.

The committee reviewed and recommended approval for revisions to the FSU Foundation, Inc. bylaws and articles of incorporation, as well as the FSU Alumni Association, Inc. bylaws. Key updates included changes to board titles, term definitions, committee structures, and the removal of certain administrative positions. Additionally, a fundraising report was presented, highlighting that the FSU Foundation has reached $146 million in the current year, with an aggregated university total of $221 million across all support organizations. The committee also noted the strong performance of the university endowment, which has grown to $1.2 billion, and received an update on the progress of the $2 billion comprehensive campaign.

The meeting included an overview of the Trustee Conflict of Interest Disclosure Process and general operational updates from the Office of Compliance and Ethics, with planned revisions to Board Policy 1-3. The committee approved a recommendation for the John and Mable Ringling Museum of Art Foundation to enter into a 3-year contract with Crowe LLP, with a renewal option. Additionally, an update was provided on the status of FY2025-2026 operational and information technology audit activities.