Feb 28, 2026BoardMeeting
BoardFlorida State University Rare Disease Day Meeting
The event focused on Rare Disease Day, highlighting the progress and mission of the Florida Institute for Pediatric Rare Diseases. Key topics included the institute's commitment to building an integrated model for genomic diagnostics, clinical care, research, and education to serve children and families. Discussions also centered on the importance of public policy, the establishment of new genomic screening programs, legislative advocacy, and the launch of a master's degree program in genetic counseling. Participants celebrated the collaboration between universities, hospitals, and corporate partners in advancing precision medicine and offering hope to families affected by rare diseases.